Saturday, Sunday, Monday, Tuesday

Monday July 16th, 2007

NCL Congress

8:30AM- 12:30PM

Session IV: Juvenile-NCL

Chair: Sandra Hoffman

Plenary Lecture

Kirill Kiselyov, University of Pittsburgh, USA

Lysosomal deficiencies and cell death in mucolipidosis type IV.

NCL Plenary Lecture

David Pearce, University of Rochester Medical Center, USA

JNCL and CLN3

Invited Speakers

Colleen Stein, University of Iowa College of Medicine, USA

Osmoregulation of CLN3 in the Renal Medulla

NCL presentations chosen from submitted abstracts.

Steven Eliason, University of Iowa College of Medicine, USA - A Knock-In Reporter Model of Batten’s Disease

Break

Denia Ramirez-Montealegre, University of Rochester Medical Center, USA - Arginine Defects in JNCL:  Implications for Nitric Oxide Production

Nuno Osorio, Universidade do Minho Campus de Gualtar, Portugal - Arginine related nitric oxide synthesis defect in btn1-?: possible implications for JNCL pathogenesis

Stephan Storch/ S. Pohl, Universitätskrankenhaus Eppendorf, Germany - Up-regulation of lysosomal acid phosphatase (ACP2) in CLN3-deficient cells and Cln3 -/- mouse brain

Jared Benedict, University of Rochester Medical Center, USA - Loss of a CLN3 protein interaction may lead to specific cerebellar phenotypes in the Cln3-/- mouse

Srinivas Narayan, Children’s Hospital of Philadelphia, USA - Palmitoyl-protein desaturase activity demonstrates intermediate activity in neuronal tissues from heterozygote cln3 knockout mice

Hannah Mitchinson, University College London, United Kingdom - Dysfunction of autophagic and endocytic pathways in Batten disease (CLN3)

Lunch

Monday July 16th, 2007

NCL Congress

1:30PM- 6:00PM

 

Session V: Common Themes and NCL Comparisons Chair: Glyn Dawson

Plenary Lecture

Steven Walkley, Albert Einstein College of Medicine, USA

Thinking “Outside the Organelle” to Understand Lysosomal Disease

NCL Plenary Lecture

Jonathan Cooper, Kings College, London, United Kingdom

Common themes in mouse models of NCL?

Invited Speakers

Susan Cotman, Harvard Medical School, USA

Cln3 and Cln6 disease mutations cause similar yet distinct phenotypes in mice and in cultured cells

Sara Mole, University College London, United Kingdom

Re-interpretation of the genotype-phenotype correlations in Batten disease are changing our perspective of the disease

Break

NCL presentations chosen from submitted abstracts

Rose-Mary Boustany, Duke University Medical Center, USA - NCL: A Common Pathway

Taina Autti, Helsinki University Hospital – Rontgen, Finland - T2 and T1 -weighted images, proton density images and  FLAIR images show abnormal signal intensity in CLN1, CLN3 and CLN 5

Elena Rusyn, Duke University Medical Center, USA - Altered NCL lipid raft morphology and sphingolipids

Claire Russell, University College London, United Kingdom - Generation of zebrafish models of Neuronal Ceroid Lipofuscinosis

Elina Maaranen, National Public Health Institute, Helsinki, Finland - Comparison of gene expression patterns of Cln1, Cln3, Cln5 and Cln8 deficient mouse models

Poster Session III

 

Dinner on your own

 

Workshops

Batten Foundation Presentations – Organizer, Frank Stehr

Rare NCL Gene Consortium – Organizer, Sara Mole