• ORGANIZING COMMITTEES
• SCHEDULE
• REGISTRATION/ABSTRACT SUBMISSION
• BDSRA MEETING
• CONTACT
• FORMS
• FLYING TO ROCHESTER
• ACKNOWLEDGEMENTS
• STUDENT FELLOWSHIPS

 

• Proceedings for NCL Congress 2007
• Batten Disease and Support Research Association
• The Batten Disease Diagnostic and Clinical Research Center
• Rochester Hyatt Regency
• Visit Rochester

Batten Disease is named after the British pediatrician who first described it in 1903. Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called Neuronal Ceroid Lipofuscinoses (or NCLs). Although Batten Disease is usually regarded as the juvenile form of NCL, it has now become the term to encompass all forms of NCL. The forms of NCL are classified by age of onset have the same basic cause, progression and outcome but are all genetically different.

Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, children with Batten Disease/NCL become blind, bedridden, and unable to communicate and presently is always fatal.

Batten Disease is not contagious or, at this time, preventable.

11th International Congress on

Neuronal Ceroid Lipofuscinosis

(Batten Disease) July 14–17, 2007

in association with

Batten Disease and Support

Research Association (BDSRA)

Annual Meeting July 12–15, 2007

Rochester, NY

Congress Description
The aims of this congress are:

• To provide a forum for presentation of the latest results by all the major international groups of researchers in Batten disease and to receive input from leading scientists whose work is relevant to understanding Batten disease.

• Encourage students, junior investigators and minorities to present their work at the conference.

• Encourage new researchers in ancillary fields to present their work on Batten gene products and to collaborate with other research groups.

• To Translate advances at the basic research level into therapeutic stratagies and improved patient care.

• To promote interactions among NCL investigators and affected children and their families.

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